28-Feb-25 | News

Living with me

So many people (children and adults) have unseen barriers like Dyslexia, ADHD and Autism that sometimes go unnoticed, or even if known, that can compromise daily living, learning and working. This song tells the story of what it’s like…

You may wonder what I’m thinking, 

How I’m feeling day to day. 

The very things you take for granted 

Cause me hurt in every way… 

My mind is bright but I cannot read. 

A smile means nothing much to me. 

Sometimes I know I cannot hide… the agonies that burst inside 

You don’t know how I feel…          

Living with me 

At times I will be hard to handle 

I shout or scream, or freeze and stare 

You might be tired, you may be busy 

You might not know, you may not care. 

Your mouth says welcome, but your eyes say not today 

I get the feeling that you’d rather I would go away. 

You use the word “inclusion”, but to me  

it’s just a meaningless illusion 

You don’t know what it’s like…       

Living with me 

There will be times when you feel helpless 

You won’t know what to say or do. 

But I know you’ll be fighting for me, 

That’s all I need to get me through. 

So hold me close and keep me warm 

A harbour from my daily storms 

When your eyes are full of kindness, when you reach out through other’s blindness 

I know that you will be…       

Living with me 

Information about the song 

Marius Frank, our Co-Head of Education at Microlink, writes: 

“In October 2024 I was at a big conference in London that focussed on Special Education Needs and Disabilities in schools. I met the wonderful CEO of Nasen, Anna Marie Hassall, and we talked about my future retirement plans to do less education work and return to my musical roots. A feature of an outstanding leader is to inspire and motivate the people around them… and Anna Marie said, “Well, why don’t you write a song about children with SEND?”.  I paused for a moment, and thought, “Right OK, I will!” 

This is the result. 

I have drawn from the lived experiences of parents, professionals, children and adults… stories of dedication, pain, hardship and amazing successes against the odds. I dedicate this song to all of them. 

I thank my colleagues at Microlink: led by the incredible Nasser Siabi, I cannot think of a more inclusive organisation that leads by example. 

I thank my partner and soulmate Cindy: how lucky I am to have one of the most amazing singer-songwriter available to pick up a piece of paper and just bring something to life! Amazing! I love you so much xxx 

And I thank you for listening, for sharing, and for making change happen.”